Putting what matters to European patients at the heart of European Elections 2019
"Our Manifesto calls on the political leaders of the EU, Members of the European Parliament and the future Commission, to ensure health is an EU policy priority and that patients’ rights are implemented across the EU, by taking concrete action on the issues that our members say matter most to patients."
Accessing the healthcare we need with no discrimination
“For a prosperous, inclusive and fair Europe, everyone, everywhere must have affordable access to the healthcare and support/social care they need.”
The EU should act to ensure that all patients, everywhere in the EU, have affordable, timely access to the spectrum of healthcare they need, from diagnosis to treatment, social and other support services.
“All patients should have the right to define their own goals and participate as equal partners in care, supported by a new European charter of patients’ rights.”
The EU should adopt a new, comprehensive and up-to-date European legislation on patients’ rights.
Driving the development of digital health
“Digital technologies must be start from patients’ priorities and be co-developed with patients to bring real value.”
The EU should ensure that Europe’s future digital health tools and systems start from patients’ priorities and are co-developed with patients.
Being a partner in driving better research
“Patients’ priorities must drive research, with patients as equal and fully-resourced partners.”
The EU should involve patients meaningfully in all EU-funded projects and programmes, working with patient organisations to set ground rules for research involvement and compensating patients for their expertise.
Helping make better health policy
“Patients’ experience and expertise will make health policy throughout Europe more effective, efficient and equitable. Patient organisations’ contribution to health policy should be valued and resourced.”
The EU should ensure meaningful patient involvement in all parts of health systems, by working with the patient community to share learning and support the implementation of good practices.
There has never been a more important time to vote, and to say loudly and clearly what really matters to patients – if we are passive, then the interests of over 150 million patients with chronic conditions may well be overlooked, in the next mandate – and we will have failed them.
To meet future challenges, health systems need to shift from being disease-centred to being person-centred, with patients recognised as co-producers and equal partners. Change often happens “bottom-up” – healthcare is all about human interactions – but change needs an enabling environment, support, and investment. This is why it needs to be a policy priority for the next European Parliament and Commission.
Together, with our vote, let’s drive positive change for all patients across Europe and make sure everyone, everywhere in the EU, has access to quality and affordable healthcare!
As our populations grow and age, we need to ensure we not only use our resources more effectively but increase the resources available. We need people who recognise this and help us all get the most out of life by ensuring we get the care we need.
Health should be a high priority for the European elections. Patients have the right to be included in the process, to feel protected and involved in the healthcare systems – their voice is what really matters.
As a legally blind person, I HUGELY support your goals on empowerment. Love Jonathan Myzcik
I have ovarian cancer, therefore I really support your efforts in the field of digital health and accessibility of information about it
As a person living with celiac disease, I support your work in providing better access to health to everyone who has my diagnose
Best of luck
As a nurse and politician I integrate patient safety into policy. Always.
Health is wealth. By working in partnership with those who are living with health conditions, great things can be achieved, from raised awareness, to empowered individuals, better access to healthcare, research that is fit-for-purpose, and future care is relevant for society.
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About the campaign
The European Patients Forum is campaigning to put what matters to patients at the heart of the EU health policy and make health an issue that gets citizens to vote and make a difference. Patients benefit from and need continued EU collaboration in health and a strong European health policy. With 72 members, representing the interests of an estimated 150 million people with chronic diseases, EPF carries the voice of a high proportion of voters. We need to make sure health is a priority in the European Union post-2020, and to position the patient community as a whole. This website shows what needs to be done, who is committed to help and allows Europe's citizens to understand where they can make an impact on health-related issues at the next European Elections.